I need more spoons*....(an anniversary, of sorts)

It's hard to believe, but this month marks five years since I was diagnosed with Rheumatoid Arthritis.

Five years of daily challenges. Five years of almost constant exhaustion and pain. Five years of never having enough spoons. Five years of pushing myself more and more. Five years of finding out who will always be on my side. Five years of fear and worry. Five years of working with the Arthritis Foundation and meeting some truly amazing people. Five years of bad nights of sleep and worse mornings. Five years of realizing how much strength I have inside of me.

Five years. It seems like a million. It's hard to remember not being sick, not having a chronic condition that forces me to slow down.

Five years of give and take. Of every choice I make during the day having a bearing on what I can do later on. Of making trades - I can go out this night, but the next I need to be in bed at 9. I can play softball two nights a week, but then I need to rest for two days. I can go grocery shopping today, but I can't cook until tomorrow.

Of course, not every day is like this. Some days I have more energy than others. Some days, it's easy to forget that I'm sick. And to look at me, most people wouldn't guess that I'm not a typical, healthy 20-something. That's life with an invisible disease - nothing to show the pain you're in, how tired you are, how the meds you just started are making you sick every morning, how you literally roll out of bed in the morning, because you can't bend your knees to stand....

But the people who know you, who see you often - even if they don't know about your illness, even if you've never said anything - they see the signs - the big, scary bags under your eyes. The IcyHot you keep on your desk. The flats you bring to work in case your heels become too much. The slow, hitching walk of someone who is fighting to get through every step. Your friends familiar with your situation will try to understand, but it's impossible. Until you have been in it, you just can't get it. People can usually understand the physical challenges, but the emotional and mental struggles? How can you really describe the frustration of not being able to do simple tasks? How can you put into words how embarrassing it is to have to ask someone to tie your shoes for you, or open a bottle of soda? Sure, you try to laugh it off, try to act like losing control isn't killing you, but it is. And for me, someone who is independent and stubborn to the core? I will make a million jokes before I admit how helpless I feel. I will struggle with something for hours before I admit defeat. And I will hold my head up until I am safely alone before I break down.

But the good things? I've seen the good in a lot of people. I have met amazing people, both online and off, who struggle with RA and Lupus and OA and any number of other autoimmune diseases. I have a great support system, between them, and my amazing family and friends. I have grown up and grown stronger. I've learned to slow down - that everything doesn't always have to be done at warp speed. I've started to take care of myself better.

And I'm ready to take on the next five, and however many come after that. RA, prepare to get your ass kicked.

---------------------------------
*Title comes from The Spoon Theory by Christine Miserandino at But You Don't Look Sick. One of the best things I've seen that tries to explain life with a chronic illness.

good news! and, tagged!

Good news first! I applied for a scholarship from my school and found out last Friday that I got it! Yay!

And the lovely MAW tagged me for this....I actually started it this morning, but kept having to go lie down cause I was tired or dizzy....it's probably the pig flu.

What are your current obsessions?

watching the trailer for Glee over and over, cause it looks amazing. Also, reading old American Idol recaps on TWOP which really soothes me for some reason. Don't know why. I'm a weirdo.

Which item from your wardrobe do you wear the most often?

Either my EMU sweatpants or one of my EMU sweatshirts. Pretty much, anything comfy, really.

What’s for dinner?

If I manage to motivate myself, chicken noodle soup and Sprite. But I have to go to store if I want that, so not likely to happen.

What is your greatest fear at the moment?

At this precise moment, I am fearless. Being a little delirious from fever and exhaustion probably helps....

What are you listening to?

The Glee trailer. Again.

What are your favorite holiday spots?

Wherever my family is.

What are you reading right now?

Nothing at the moment - I have a few books on hold at the library though, will be picking those up tomorrow

What is your guilty pleasure?

see 'obsessions'

Who or what makes you laugh?

who or what doesn't?

What is your favorite Spring thing to do?

The first night where I can take a long drive with the windows down and the music up. People wonder why I don't fly when I go visit my family in Tennessee....I think because long drives alone are one of the few times I really feel at peace.

Where are you planning to travel next?

Hoping to go see Becca in San Diego over Labor Day, but not sure if it'll pan out

What is the best thing you ate or drank lately?

Water, just a few minutes ago.

When was the last time you were tipsy?

for about three minutes Saturday night, right before it switched to falling-down, pants-shitting, bad decision-making, table-dancing drunk (for the record, I only did one of those things) It was one of my good friends bachelorette parties :-)

What is your favorite ever film?

Princess Bride, Sabrina, Say Anything, Shawshank Redemption

What is the biggest life lesson you’ve learned from your kids?

That they don't exist?

What book do you know you should read but refuse to?

I can't think of anything....I will pretty much read whatever is put in front of me

What is your physical abnormity/abnormal physical ability?

Abnormally long toes. I posted a picture of them somewhere.

What is your favorite color?

Blues and greens. All of 'em. <--- Same as my Auntie M

Can the people outside your car hear the music playing inside your car?

Probably. It's most fun when I forget I have the windows down and I'm belting out some Xtina and dancing in my car, and a car full of businessmen pulls up next to me and starts laughing....

My addition: In a perfect world, how many hours sleep would you get per night?

10-12. I love sleep.

And I'm not tagging anyone individually, because I am too tired to copy and paste in links, so I tag everyone, all at once. Win.

Oh, Mr. Cartwright....

By popular demand (or three people...good enough for me...)

I had a dream a few nights ago that I was being chased by the henchman of evil Mr. Cartwright. He was trying to have me killed. A cop was assigned to protect me, and I was put into hiding, but in the end, I learned that the cop and Mr. Cartwright were in cahoots, and the cop was actually the mastermind. I woke up as the cop was about to shoot me.

Yes, I apparently dream in movies.

Last night I had another crazy dream that had to do with aliens (if you've seen the Alec Baldwin Hulu commercial, picture that) were attacking my castle.
Yea, I had a castle. I don't know.

Last Saturday, I was in that spot between awake and asleep, when everything is a little bit blurry and unsure, and I felt someone in my room, watching me....and then I felt someone grab my arm. I literally jumped out of bed at that point, and realized I had [likely] been dreaming. Either that, or there's a ghost in my room.


So yes, many crazy dreams lately....I think it's a combination of being overtired and stress. I am looking forward to next week because it's my spring break, and I only have to work, no class. Of course, I have a speech to write and two papers to start on, but that's not that bad.

In other news, last Friday I had a box of Valentine candy left on my desk at work. I have no idea who it was from, but I just like to think someone appreciates me. I'm happy just knowing that.

Also last Friday, Raeleen and I went out for a girls' night, and met many interesting people. My favorite is still the dashing man I met when he came up to the bar to get a drink. We talked for a minute, and then he had to run off before he could order, so he asked if I would mind ordering for him, and gave me some money. He said I have a very innocent face, so he felt he could trust me with his beer. Obviously, he doesn't know me. Anyways, he was completely sexy and oozed charm and personality. Unfortunately, I wasn't drinking that much, so I didn't have the nerve to talk to him later on that night for more than a few minutes. I need to learn how NOT to feel like an idiot around men I'm attracted to, but I honestly don't see that happening anytime soon.

What else? School is going well, as I mentioned in the last post. I have a lot going on, and I'm completely exhausted all the time....I was also sick for about a month and a half, so that didn't help too much. I'm finally just about over it, but still rundown. Such is life.

I'm sure there'll be more soon...maybe something more entertaining than just tales of my not-so-exciting life.

Hope you all are doing well!

clouded thinking....

I am discovering that it is extremely difficult to concentrate on a Business Ethics assignment when there is a mariachi band playing in my sinuses.

Also, when in the middle of my Business Communication homework, I fell asleep with my head resting on the top edge of my book, and then again when trying to form an intelligent thought about writing a winning a proposal? Should have given up then and gone to bed. Instead, I tried to keep writing once I shook myself awake, and the result was something along the lines of: "To write a good proposal you should propose something that you are good at because if you aren't good at the proposed plan you will not win another proposal."

I deleted that, saved the file, and set it aside until my lunch hour tomorrow. Maybe by then I will be out of my Tylenol Sinus and Zicam induced fog.